Watch Live Today: Rare Diseases - A Conversation on Value Assessments

View in Browser     Friday, December 10   One in 10 Americans suffers from a rare disease—that’s 30 million Americans who need access to treatment.  What are some of the unique roadblocks drug manufacturers face when developing orphan drugs? How can we encourage new breakthrough treatments at prices patients can afford? What can policymakers do to increase innovation and access to orphan drugs for all patients? The Hill will bring together researchers, advocates, and more for a comprehensive discussion on orphan drugs. Speakers: Rep. Larry Bucshon M.D. (R-IN), Member, Energy and Commerce Subcommittee on Health Rep. Anna Eshoo (D-CA), Chair, Energy and Commerce Subcommittee on Health Dr. Ge Bai, Professor, Healthcare Policy & Management, Johns Hopkins Bloomberg School of Public Health Tammy Boyd, JD MPH, Chief Policy Officer & Senior Counsel, Black Women’s Health Imperative Annie Kennedy, Chief of Policy, Advocacy, & Patient Engagement, EveryLife Foundation for Rare Diseases Kelly Maynard, President & Founder, Little Hercules Foundation Dr. Brett McQueen, Director, Center for Pharmaceutical Value, University of Colorado Debra Regier, M.D., Medical Director, Rare Disease Institute, Children’s National Hospital   Friday, December 10 10:00 AM ET / 7:00 AM PT WATCH LIVE   Join the conversation! Tweet us using @TheHillEvents and #TheHillRareDisease             Did a friend forward you this email? Sign up for The Hill Newsletters     Forward this Newsletter       Privacy Policy  |  Manage Subscriptions  |  Unsubscribe  |  Email to a friend  |  Sign Up for Other Newsletters   The Hill 1625 K Street, NW 9th Floor, Washington DC 20006 © 1998 - 2021 Nexstar Media Inc. | All Rights Reserved.

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